For years, Sergio Quintana’s family sought a facility that could address the complex needs resulting from Prader-Willi Syndrome. He struggled with aggressive episodes, self-injury, and severe compulsions leading to bowel and gastrointestinal issues. His struggles with communication — he was mostly nonverbal and had difficulty expressing his wants and needs — only amplified his challenges. While he could talk in limited ways, he wasn’t able to carry on full conversations or advocate for himself, which often led to physical outbursts.
In November 2020, Sergio was admitted to the Nexus Jump Start Program after an extended period of escalating aggression and instability. “We tried other facilities closer to home, but they didn’t help him. His behaviors only worsened,” said Cindy, Sergio’s caregiver. “When Nexus stepped in, it changed everything.”
PWS is often misunderstood by medical professionals unfamiliar with its complexities. In New Mexico, the family found themselves constantly in “education mode,” explaining PWS to doctors who had never treated it before. “It was exhausting having to advocate at every step,” said Cindy. “People didn’t understand what kids with PWS go through. But at Nexus, we didn’t have to explain anything. They just got it.”
A major factor in Sergio’s transformation was the interdisciplinary approach Nexus took to his care. Structure and routine became the foundation of his daily life. The team introduced behavioral modifications and a medication regimen that drastically improved his ability to regulate his emotions and impulses.
Sergio had previously been prescribed multiple mood stabilizers with mixed results. Nexus clinicians conducted a thorough medication review, trialing Sergio on several medications until they found a breakthrough combination that improved his mood and behavioral regulation. He was even able to participate in a proprietary pharmacological trial to address his dermatillomania, or skin-picking disorder.
One of the most challenging aspects of Sergio’s care was his gastrointestinal health. Many children with PWS develop megacolon, a condition where chronic constipation causes the colon to stretch and lose function. Nexus implemented a structured bowel protocol. The team worked patiently with him to find the most effective interventions, ensuring that his medical needs were met while also minimizing distress.
Sergio thrived in an environment that balanced routine with individual learning needs. The Jump Start Program’s token economy system, which allows children to earn rewards for completing tasks and engaging in positive behaviors, was especially motivating for Sergio. “The prize box was like his mini-Walmart,” Cindy said. “It motivated him and gave him something to work toward.”
Sergio’s time at Nexus was about more than just stabilization; it was about preparing him for a sustainable future. The case management team played a crucial role in preparing for his transition to Latham Centers in Massachusetts, a facility specializing in PWS care. The team conducted virtual training sessions with Latham’s staff, providing insights into Sergio’s routine, behavioral triggers, and care strategies. They even created a “day in the life” video to give Latham a clearer picture of his daily needs.
Even after leaving Nexus, Sergio’s progress continues. His behavioral episodes, which once occurred daily, now happen only occasionally and are far less intense — lasting just minutes rather than hours. He has adjusted well to full-day schooling, a milestone that once seemed unattainable.
“I can’t thank Nexus enough,” Cindy shared. “They didn’t just help Sergio; they gave us all a chance to breathe again.”
